National Organizations

NDSS – National Down Syndrome Society

National advocacy and research organization.  The site provides general information about Down syndrome, parent and support group resources, the latest in research and medical,  positive messaging, and information on Buddy Walks around the world.

NDSC – National Down Syndrome Congress

Provides information, resources, support, and education, as well as teaching advocacy and networking opportunities.

Down Syndrome Affiliates In Action

National association that provides resources to local Down syndrome groups.  Provides conferences and educational information.

National Down Syndrome Adoption Network

Our mission is to ensure that every child born with Down syndrome has the opportunity to grow up in a loving  family.  The National Down Syndrome Adoption Network provides information to birth families who may be seeking alternatives to parenting as they prepare for the arrival of their child.  Making an adoption plan for a child with Down syndrome is a loving choice and can be the right choice for some families.  The NDSAN is also here to provide support to families who wish to adopt a child with Down syndrome.

For New Parents

Dreams Video

Adults and children with Down syndrome talk about their lives.

Grace:  A Story of a Family and Down Syndrome

A short documentary.

Down Syndrome in the 21st Century

Highlighting the abilities of people with Down syndrome.

Other Local Area Support Groups

FEDS – Families Exploring Down Syndrome

Providing family support and resources to families in the Macomb County area and beyond.

ACA – Washtenaw Association for Community Advocacy

Supports individuals with developmental disabilities and their families, doing so throughout a lifetime by helping them to achieve and maintain inclusion in the community.

Down Syndrome Guild of Southeast Michigan

Providing resources and support for communities in SE Michigan, including Wayne, Oakland, Livingston counties, and beyond.

Michigan Alliance for Families

Provides information, support, and education for families who have children (birth through 26 years of age) who receive (or may be eligible to receive) special education services.